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World NET Cancer Awareness Day

Today is Worldwide Neuroendocrine Tumor Awareness Day. Thank you for taking the time to follow my blog and be a part of my life. Just by doing so you already know so much more about NETs than the average bear.

Steve Jobs of Apple; Dave Thomas, the founder of Wendy’s; and Derrick Bell, the famous black Professor of Law at Harvard,  all passed away from Neuroendocrine Tumor or Carcinoid.  Unfortunately, there are other famous people and numerous not-so-famous people with NET/Carcinoid, that probably don’t know it, yet, due to not experiencing symptoms, or from being misdiagnosed.

You can learn more about this disease by visiting, and help spread awareness throughout the year by writing the words: “Neuroendocrine Tumor/Carcinoid Cancer” when you contribute to wonderful organizations such as “Relay For Life,” that do not acknowledge this rare cancer.

As for me, I’m still fighting off a cold that has taken advantage of my compromised immune system. All things considered I’m feeling okay after my last treatment, just incredibly tired and run down. I had my usual gamut of follow-up lab work yesterday. On Monday I start my regimen of 3x-a-day injections of octreotide that will last until Kathy and I return to Houston for Round 3 on December 4th.

Take care, and as always, thanks for visiting.


Kathy, Loving Wife

For those of you that watch Gray’s Anatomy, the show that aired on this particular day actually discussed Carcinoid. One of my favorite characters was found to have a Carcinoid tumor attached to a part of his heart. They actually discussed Carcinoid Crisis and octreotide, so someone did their homework. Unfortunately the character died as they were unable to detach the tumor from the part it was connected to. Not exactly the outcome we were hoping for but it is a reality…… I sat there balling like a baby.

Tracy Lucas

I am going thru this with my husband. are you ok what do i need to know. we are 8 months into this.


Hello Tracy:
Thank you for your message. I’m very sorry to hear that your husband has been diagnosed with NETs. However, I’m very glad to see that you’re doing all you can to help him! I think the most important thing you can do is to find him a doctor who is a NETs specialist. I’m not sure where you’re located, but a good place to start is on this “Find a Doctor” page: Most oncologists handle so few NETs cases that they’re likely not familiar with all the cutting edge treatments and therapies. And thanks for asking, I am doing well. I’m two+ years into a Pazopanib clinical trial at Stanford and my disease is stable.
I wish you and your husband the best,

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