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Resting at Home

Not much to report, but I’m so glad to be back home and finished with PRRT. Unfortunately I feel worse this time than the previous trips. I think that after four rounds my body is just screaming, “enough already!” I’m tired and queasy and just a pleasure to be around. Thank God for Kathy and her TLC.

I head to LA in four weeks for a 2-day follow-up at Cedars-Sinai with my oncologist. Then the first week of May I’ll be returning to Houston for a couple days of follow-up scans and evaluation. As long as everything remains stable, or hopefully even shrinks a little, we’re in good shape.

I know I’ll feel much better in a week or two. I had my monthly injection of Sandostatin LAR yesterday, the first since October, which will help with my symptoms. I’m so looking forward to regaining some strength and stamina. I will keep posting with more news from the doctors as it becomes available.

Glad to be Back Home

Well we’ve been in Gilroy for about a week now and it’s great to be back home. We really missed everyone and especially missed our comfy home. The trip back was uncomfortable for me but that was to be expected. It was great to be able to crawl into my own bed. Unfortunately Kathy had to stay in the guest room until Wednesday as an added precaution.

I still have abdominal discomfort and queasiness that comes and goes, but that’s getting a little better every day. My energy level is also improving. I went to work for a few hours Wednesday – Friday last week. My post-therapy symptoms are considered normal and I didn’t have any complications. I was able to get my regular monthly injection of Sandostatin LAR on Wednesday so that helps me feel a little better.

I go back to Houston for round two in October, the 11th through 15th. It will just be a 5 day trip, with an MRI on Tuesday afternoon before the Wednesday therapy, then flying back home on Saturday. Hopefully that MRI will show some tumor reduction.

Fundraising is still moving forward at an incredible pace, with just over $46,000 donated to date. Thank you very much to everyone who has contributed. The first big benefit event is this Friday afternoon, a golf tournament at Gilroy Golf Course. The tournament is already sold out, but there are still seats available at the 6:00pm dinner for $25 each. If you’re interested in joining us please contact Mark Derry at mderry@gilroydispatch.com. I’m really looking forward to a great day spent with many friends and family members. Also please mark your calendars for another fantastic benefit event scheduled on October 8 at 6:00pm – a dinner and auction at the Portuguese Hall. Please contact Mayor Al Pinheiro for tickets and more information at al@pinheiroinsurance.com

Thanks to all of you who are following along here, posting your supportive comments, sending good wishes via text, e-mail and phone, and for giving us the strength and support to keep on fighting the good fight. Take care.

More Scans – Day 2

I think it was actually a little hotter today in Houston than yesterday. Incredible. I suppose you could fry an egg on the sidewalk, except I heard a report that it’s so hot all of the chickens are laying hard boiled eggs.

Today consisted of more scans on the same machine that was in yesterday’s photo. First was a renogram to check for kidney function, then a bone scan. Different blends of the same radioactive isotope were injected for the imaging. The kidney scan is done to make sure that my kidneys are functioning okay since that’s where next week’s radiation therapy will settle aside from my tumors. They need to be confident that my kidneys will be able to handle the influx of radiation and then effectively clear it from my system.

The bone scan was done to look for the possibility of bone metastases. That scan went from head to toe. Afterward it was evaluated, and then they did a follow-up scan on my abdomen to get a better picture of some areas that they wanted to look at a little more closely. Ideally the first scan would have been enough, meaning they didn’t see anything. We’ll find out the results of this scan, and all of the scans from this week when we meet with the doctor on Monday afternoon.

I also had to stop taking my injections yesterday morning since that drug can interfere with some of the imaging. It’s the first time I’ve been off of Sandostatin for years, which helps control my symptoms, and today I’m not feeling so great. Lots of flushing and discomfort, especially after eating. I get to start my injections again tomorrow evening and can stay on them until Monday, when I’ll be off of them again. Hopefully this therapy will be very successful and will help knock down my carcinoid syndrome symptoms.

Through it all, the people at Excel have been great. I’m also very fortunate to have Kathy by my side every step of the way.

Tomorrow afternoon will bring a couple rounds of octreoscans and an MRI. I’ll post more then. Take care.