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Progress Report

In July I had my usual course of 6-month follow-up tests and exams. I’m very happy to report that the MRI of my abdomen and pelvis showed that all disease is stable. There are no new tumors or spread of tumors. What’s more, a couple of my significant blood and urine tests were at their lowest levels ever. My Chromagranin-A result was 4.4, and my 5-HIAA result was 20.4. Both of these markers are used to help monitor the effectiveness of treatment and detect recurrence of tumors. All of this would indicate that the PRRT I started two years ago is still having a profound and positive effect on my tumors. Great news!

Comments

Robert S
Reply

Just catching up on some things and decided to check in and see if you had any updates. I was so very pleased to see things are progressing in a positive manner for you and your family. We all get busy in our day to day drama however it is really put into perspective when I check into where you are. I am glad you have such a supportive family and group around you. That is a reflection on you and your family in every way.

My best to all of you,

Robert Schwab

Niki
Reply

Thank you so much for your blog! I’m a 34 y/o mother of 3, music teacher, and worship leader from central from central Florida. I have learned more from you in the past 10 minutes than I have from all the internet searches I’ve made since being diagnosed about a month ago. I’m going for my 1st octreotide scan results this Friday. Your posts have given much clarity as to what I can expect in the future and how to prepare for it.

eileen
Reply

I am also a patient at Stanford / Dr Kunz. Were you at the conference with Dr Visser?

Brian
Reply

Hi Eileen:
No, but I did attend the NET Conference at Stanford in March. My wife and I try to attend that one every year. It’s where I originally met Dr. Kunz and so far I’ve been very pleased with her and the team at Stanford. I’m really looking forward to determining whether or not my pazopanib trial is having any impact on my turmors. I hope you’re also satisfied with your care at Stanford and that you’re doing well.
Take care,
Brian

eileen
Reply

Hello, Have been having a very hard time with recovery from surgery in April. Have stopped receiving correspondence from Stanford so I appreciate the info on the conference.That is where I met Dr Visser who performed my surgery. Where do I register for the conference

I am so glad you are doing well! You are an inspiration. I appreciate having contact with you. Thank you!

Brian
Reply

Hello Eileen:
Thanks for your message. I’m so sorry that recovery has been difficult. The Neuroendocrine Tumor Patient Conference is January 24 at the UCSF Mission Bay Conference Center. Just follow the link to register. Hope to see you there.
Take care,
Brian

Nancy
Reply

Hi
Your blog is intertesting, thank you.
My husband has carcinoid and has good months and bad. He recently started PRRT and so far the results seem very promising.
I notice you have not written in awhile, are you OK?
Nancy

Brian
Reply

Hello Nancy:
Thanks for your post. I’m so pleased to hear that your husband is doing well with PRRT. I wish him the best. I am doing quite well on my Pazopanib trial at Stanford, and will be updating my blog soon.
Take care,
Brian

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